Now life's back to normal. A few minor residuals aside (numb & painful feet, tingly hands, and occasional fatigue), Matt's as good as new.
That's good. Here's why:
Back in August, I wrote about how Matt's neurologists though he might have CIDP, a chronic version of Guillain-Barré. The docs wanted to get him on a lifelong steroids treatment asap, but Matt resisted. We weren't convinced their diagnosis was accurate, and Matt didn't want to take drugs needlessly for the rest of his life.
When he met with the docs to question their diagnosis, they re-evaluated his condition and said, "Well, you're doing pretty good. But there's still a chance you have CIDP. So don't get your hopes up." (Ok, maybe I just interpreted that last part...)
They told us that, technically, if Matt didn't relapse within six months of onset, THEN they'd feel comfortable NOT calling it CIDP.
So my point is:
- It's been six months since onset.
- Matt's doing better than ever.
- I think it's safe to say that Guillain-Barré is behind us.
- Anybody want to buy a barely-used wheelchair?